It’s been two months since my friend entered went to the ER and nearly died. Hope Hospice has been a great assist in caring for him at home. It’s been a hard two months; but we’re making it. Officially sober since May 11th and out of the woods from withdrawal. There is hope.
End stage Liver disease is a horrible way to die. I have to sit by and watch the breakdown of a life. As he drifts off to sleep, he mumbles and his hands flail about animatedly. He has no idea. He calls out, he sometimes knocks things over.
He hallucinates all the time. Don’t get me wrong, he has times of lucidity; but he still sees things and gets confused. Sometimes I have to “poke” the images he sees to show him that he is seeing things. He was convinced a man had broken into our home. I had to fake calling the police in order to calm him down. It wasn’t until several days later that I was able to convince him it wasn’t real. Now, he’s told me, when he’s not sure if something is real, he will poke at the image or he’ll close his eyes to see if it will disappear.
He’s up and around now using his walker. He’s lost the water weight (ascites) in his legs and stomach thanks to water pills prescribed by the doctor. He has fallen several times and gotten scraped up; but we’ve gotten him off the ground without additional assistance. Walking around does, however, make his feet and legs sore. We’re hoping that he’ll start physical therapy soon to help.
His appetite has increased at times; but then he will go with only one to two bites of food. He’s taking extra fiber and MoM to help him have BMs. He is, for the most part, in good spirits. I have even been able to take him out to the eye doctor after he broke his glasses and needed a new pair.
He LOVES his CNA. She comes three times a week and gives him a bed bath, puts lotion on him and makes him feel better. He adores her. She’s a great person and I think the world of her, too. He has a nurse who comes once a week and a Social Worker every two weeks.
All things considered, he’s doing very well.
My son went to Jazz Camp at FSU in June and I had to drive him. This left us having to get someone in to stay with my patient. Thankfully, there is a lady from my church who is a retire PA who came over and stayed the two days. She then stayed two days when I went to pick my son up.
My son LOVED the camp, learned new techniques to take back to Jazz band at CCHS and made several new friends. He had a great solo at the Friday evening concert combos (4 songs) and played in two pieces on Saturday afternoon. He did a great job and I am so proud of him.
This coming weekend, we’re heading down to Hollywood Hills HS for an Indoor Drumline workshop with Stryker, a semi-professional Drumline. It’s only one day and he is so looking forward to the opportunity to sharpen his drumming skills.
This summer has been so good for him. The last week of July is band camp and I know he is looking forward to that as well. My son impresses the heck out of me. He’s so dedicated to his music and I am so proud of his dedication and skill. I love the stuffing out of that kid.
Between the two of these guys, I am have seen such incredible progress and couldn’t be prouder of them. What a great summer so far.