Last week of school!

So happy this is the last week of school.  My son is doing great.  Honor Roll student for the last 3 years and I couldn’t be prouder.  This weekend, the Juniors decorated crowns to wear today for school as the incoming Seniors for 2017-18.  I had three kids here doing it and they came out great.  Each one reflected the person greatly.  Such fun for them.

This has to be a Southern thing; because I’d never heard of it growing up.  It’s cute and they had a blast today.  They’re all looking forward to summer break.  I am, too!  For the first time in over 20 years, I’m going to see a friend.  I so can’t wait.  We’ll be leaving home on the 3rd and spending a couple of weeks up  north.

The drive will be horrible, I’m sure; but we’ll get there. 😀 It’s 17 hours; but I can do it.   Just take lots of breaks and take our time.  Two days should get us there.  He’s as excited to see me as I am to see him.  I’ll be staying with him & his wife and his daughter lives close by.  It’s going to be awesome.  Already have my dog sitter locked on and she comes to stay here while we’re gone.

I’m so hoping and praying that the trip will be great and that I will not feel crappy while I am gone.  Hopefully God will take care of me while I am traveling. 😀

I’ve been doing a lot of journaling, bible study and praying.  Just trying to keep busy for while I await the trip.  Not doing much else these days.

Advertisements

Happy Mother’s Day

I hope your day is spent in beauty and love.

My wish is to always be the best Mother I can be to my son.  The Sarah Connor Meme was what he posted on my FB wall for Mother’s Day.  I guess that speaks for itself. LOL!  Oh how I love that boy of mine. ❤

Friday evening was the Band Awards Night.  My parents came and my son received his Junior year award, his Jazz, Percussion and Marching pins and was named Most Outstanding Musician for this past year.  So proud of him and his accomplishments. Afterwards, I took him, my parents and one of his friends out for dinner at Ruby Tuesdays. Delicious food, great company and lots of laughs.  Gave my mom her gifts for Mother’s Day and we all had a great time.  So blessed to have these great times together.

I know I have a year until my son graduates and we’re making the most of our time together.   The first two weeks after school gets out, we’re going to Virginia to spend time with friends.  Not sure if the whole time will be there; but we shall see.  Also have an open invite from my Uncle in NC to stop by, so I may spend a few days with them as well.

I am so looking forward to our trip.  It’s about a 17 hour drive; but I know the two days it takes to get there will be tedious, however, well worth the hassle.  Seeing a friend I haven’t seen in over 20 years.  So blessed to be able to do so.  He’s just had both knees replaced and I just can’t let any more time go between us.  I have to see him.  I can hardly wait to meet his wife.  She’s sweet and kind and has tamed this man a lot from our youth.  I adore them.

This year has gone by quickly; but the last week has seemed to crawl by slowly.  I guess knowing that it is only a few weeks until I get to vacation must be what is making it seem this way.  Of course, the time we’re away will fly by for sure. LOL!

Last week, my cousin laid to rest her boyfriend of 17 years.  It was unexpected.  He had a brain tumor that he didn’t know about, caused him to lapse into a coma and become brain dead within two days.  Devastating her, his family and their friends.  What is strange is that in September, shortly after my own loss, we had gotten together and had discussed what would happen to her if something happened to him.  I had been explaining to her all the things I needed to go through with the power of attorney, lawyer, cremation, etc.   She expressed her concerns about her situation with me and I listened and shared what I knew from my own personal experience.  I hope it led to a talk with him about it.  She hasn’t been up to talking to anyone, so I am not sure.  I feel so bad about the situation.  She loved him so much.

Actively working on my patience.  On my second Max Lucado bible study book.  Did a short one on patience that I’d gotten from another source.  It was only on patience and about 60 pages, but very intense.  I certainly needed that.  Still waiting on God’s perfect timing.  ❤

May is Lupus Awareness Month!

5ae1cc1e540adc67b24055332a0739da

I’ve been battling this disease for a long time and I must say that it sucks!  Prednisone sucks!  Pain sucks!  Your body killing itself sucks!

SLE or Systemic Lupus Erythematosus  can affect the joints, skin, kidneys, blood cells, brain, heart, and lungs.  Symptoms vary but can include fatigue, joint pain, rash, and fever. These can periodically get worse (flare-up) and then improve.

While there’s no cure for lupus, current treatments focus on improving quality of life through controlling symptoms and minimizing flare-ups. This begins with lifestyle modifications, including sun protection and diet. Further disease management includes medications, such as anti-inflammatories and steroids.

I have Lupus (SLE) and it has given me problems with my Kidneys, Heart and Lungs.  I also get the neuropathy in my hands and feet, as well as skin rashes, photo sensitivity

The side effects of the Prednisone is almost as bad as the disease itself.  From the weight gain, blood sugar increase and rage, you look like a chipmunk with a cheek full of nuts!

So, what do you do when your body produces antibodies that should kill off infection instead attack your organs?  You pray, a LOT!  You beg to feel better.  You hope for a cure and you have a stronger faith in God that you will make it until the next day.

Most people who have Lupus also have another disease that effects them as well.  Mine is Fibromyalgia, which is equally sucky.

This disease effects each person differently and is hard to diagnosis.   Only 20 years ago, Lupus was a death sentence with only about 4 in 10 people surviving.

Some people require chemo therapy to combat Lupus, shutting down the immune system so that it doesn’t continue to attack the major organs.  It’s hard to believe that we have to shut down our immune system to combat our internal death.  Nothing like your body hating you so much that it wants to kill you.  Ha, ha.

I’m on kidney medication for the rest of my life; because Lupus causes me to get infections as well as blood in the urine.  I have chest pains due to swelling of the lining of my heart and lungs.  I have to be careful around those who are sick; because I am 75% more likely to get what they have, only worse.  I’m more susceptible to bronchitis and pneumonia.

Skin rashes are quite common for me, especially if I have been out in the sun for long periods of time.  It’s why I always try to wear a hat and my sunglasses when I go out.  It’s not unusual for me to have that “butterfly” rash on my face, to run a fever and hurt.

Put On Purple!!!!  May 10th is World Lupus Day.  As purple is the ribbon color for Lupus, I encourage people to wear purple on the 10th in support of the need of more research, awareness and knowledge for this autoimmune disease.

For more information:  http://www.lupus.org