Posted on

May is Lupus Awareness Month!

5ae1cc1e540adc67b24055332a0739da

I’ve been battling this disease for a long time and I must say that it sucks!  Prednisone sucks!  Pain sucks!  Your body killing itself sucks!

SLE or Systemic Lupus Erythematosus  can affect the joints, skin, kidneys, blood cells, brain, heart, and lungs.  Symptoms vary but can include fatigue, joint pain, rash, and fever. These can periodically get worse (flare-up) and then improve.

While there’s no cure for lupus, current treatments focus on improving quality of life through controlling symptoms and minimizing flare-ups. This begins with lifestyle modifications, including sun protection and diet. Further disease management includes medications, such as anti-inflammatories and steroids.

I have Lupus (SLE) and it has given me problems with my Kidneys, Heart and Lungs.  I also get the neuropathy in my hands and feet, as well as skin rashes, photo sensitivity

The side effects of the Prednisone is almost as bad as the disease itself.  From the weight gain, blood sugar increase and rage, you look like a chipmunk with a cheek full of nuts!

So, what do you do when your body produces antibodies that should kill off infection instead attack your organs?  You pray, a LOT!  You beg to feel better.  You hope for a cure and you have a stronger faith in God that you will make it until the next day.

Most people who have Lupus also have another disease that effects them as well.  Mine is Fibromyalgia, which is equally sucky.

This disease effects each person differently and is hard to diagnosis.   Only 20 years ago, Lupus was a death sentence with only about 4 in 10 people surviving.

Some people require chemo therapy to combat Lupus, shutting down the immune system so that it doesn’t continue to attack the major organs.  It’s hard to believe that we have to shut down our immune system to combat our internal death.  Nothing like your body hating you so much that it wants to kill you.  Ha, ha.

I’m on kidney medication for the rest of my life; because Lupus causes me to get infections as well as blood in the urine.  I have chest pains due to swelling of the lining of my heart and lungs.  I have to be careful around those who are sick; because I am 75% more likely to get what they have, only worse.  I’m more susceptible to bronchitis and pneumonia.

Skin rashes are quite common for me, especially if I have been out in the sun for long periods of time.  It’s why I always try to wear a hat and my sunglasses when I go out.  It’s not unusual for me to have that “butterfly” rash on my face, to run a fever and hurt.

Put On Purple!!!!  May 10th is World Lupus Day.  As purple is the ribbon color for Lupus, I encourage people to wear purple on the 10th in support of the need of more research, awareness and knowledge for this autoimmune disease.

For more information:  http://www.lupus.org

 

Advertisements

About irishgoddess1337

SAHM, Retired Marine, Christian who survived Domestic Violence, living with Lupus, Fibromyalgia, Migraine, TMJ, Trigeminal Neuralgia, Sleep Apnea and living my life for Jesus! My son is a teen! YIKES! I love music! My son plays drums in his High School Marching Band & Percussion group. We live with three fur babies -- Tippy the Corgi and Honi & Teddy the Poms. I scrapbook, stamp and make rag dolls for fun! I've recently started acrylic painting and making jewelry. Life is good!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s